Why GP appointments become harder with dementia
As dementia progresses, GP appointments become more challenging. Your loved one may struggle to describe symptoms accurately, forget what the doctor said, or become anxious in unfamiliar settings. Meanwhile, the standard ten-minute appointment slot was never designed for the complexity of dementia care.
With preparation, you can make those ten minutes count.
Before the appointment
- Book a double appointment — most GP practices will accommodate this if you explain the reason. Call the receptionist and ask.
- Write a brief summary of concerns, changes, and questions. Be specific: "Mum has fallen three times this month" is more useful than "she seems worse."
- Bring the medication list — a complete, up-to-date list of everything they're taking, including supplements.
- Note any behavioural changes — increased confusion, sleep disruption, agitation, appetite changes. These are often more telling than what the patient reports.
- Prepare your loved one — tell them where you're going and why in simple, reassuring terms. Avoid surprises.
During the appointment
- Let your loved one speak first if they're able to — it's important they feel included.
- Supplement what they say with your observations. You might say, "Mum mentioned she's sleeping fine, but I've noticed she's up several times a night."
- Ask the GP to explain things in simple language, and don't be afraid to ask them to repeat or clarify.
- Take notes — or ask if you can record the conversation on your phone.
- If new medication is prescribed, ask about side effects and interactions with existing medications.
Consent and speaking on their behalf
GPs need consent to discuss a patient's health with family members. If your loved one has capacity, they can give verbal consent at the appointment. If capacity is diminished, a Lasting Power of Attorney for health and welfare allows you to be involved in decisions.
Even without formal LPA, most GPs will listen to your concerns about someone in your care — they just may be limited in what they can share back.
After the appointment
- Update the care circle with what was discussed and any changes to medication or care
- Book any follow-up appointments or referrals immediately — don't leave it for later
- Implement any changes (new medication, dietary advice) while the information is fresh
- If you're unhappy with the outcome, you can request a second opinion or ask to see a different GP at the practice
Building a relationship with the GP
If possible, try to see the same GP each time. Continuity of care is especially valuable in dementia — a doctor who knows your loved one's baseline can spot changes more easily.
Many practices allow you to request a named GP. It's worth asking.